Home Sweet Home

Thanks to Pam Brown and my mom for holding down the hospital fort today.

Kean's counts went down again-- even though he's on Neopogen to push them up.

He's down to 550 from 750.

But Dr. Chang felt even though he is highly susceptible, he'd be happier at home.

I was so excited to see him....

but he shocked me with how much he changed in the two days I was gone.

 So much of his hair has gone awol-- it is crazy.

If you kiss his head, you get  hair all over your lips.

When I gave him a bath tonight, his hair came off in gobs.

But the girls freaked at the idea of shaving it.

So we'll just deal with golden hair everywhere.

I thought Kean would be excited to have a real bath but he didn't seem to care.

I had to drain out the water in the tub because

he was so tired he wouldn't even sit up.

I've actually had a few second thoughts if we did the right thing

by bringing him home. He is so weak and looks awful.

Plus they gave me a whopping three pages worth of medications.

I really would like to get off this merry-go-round.

It's not fun anymore.

Oh wait, it was never fun.