Sunday, January 15, 2017
I'm hoping Kean won't remember how traumatic
it was for him to go through all this hospital testing.
I tell ya, I never want to go through it again. Holding him
down was traumatic for me!
As a refresher, Kean had a couple of seizures a month or so ago.
Lucky us, we got to spend the night in the hospital
to test his brain activity and his sleep patterns.
That miserable, miserable test showed he has moderate
sleep apnea and surprise-- his heart was stopping several times in the night
for two seconds or more.
That new, little trick earned us another trip to the hospital
to take home a heart harness monitor.
More fun times, especially in the middle of the night
as Kean woke me up time and time again to say "off"!
We finally got in to see our new Pediatric Cardiologist
(super cool Dr. Womack). We still have to wait
to see the Pediatric Neurologist and the Pulmonary Specialist.
We got the best possible news!
And I think Kean even sensed what the doc was going to find.
He ran more tests and talked our ears off...
But here are the cliff notes.
He said, and I quote: "Bottom line, your son has a good ticker".
In other words, this mama doesn't need to worry!
Now to get through the next two appointments.
And certainly hoping for the same good results.
Friday, December 30, 2016
You know how each anniversary has its designation: gold, paper etc.
This birthday, clearly is the food birthday.
Don't believe me?
Let's see, I started the morning off with Reese surprising us all with
homemade Blueberry Pancakes.
She had forgotten that two of my girlfriends were taking me out for
The afternoon was gobbled up (like that food reference?)
with taking the pups to the vet for follow-ups, a
shopping spree at the grocery store (more food)
and then dinner out with my 98-year-old grandmother...
my sweet mother-in-law...
and my wonderful parents.
Byron and the kids came too.
I don't know how we missed getting pictures of them.
But trust me, I need to be rolled up the stairs and into bed.
Oh, and feeling well loved.
Thanks for all the birthday wishes.
I have the best group of friends.
Wednesday, December 28, 2016
I've had so many of you ask if we got the results from Kean's
testing on his seizures.
We don't meet with the Neurologist for a few more weeks
but Kean's pediatrician called on Friday to say while he hasn't
gotten the official report, he did not see anything scary.
However, (and geez, doesn't there always have to be a however with
this kid), the sleep study showed his heart stopped several times
during the night for short durations (over 2 seconds is all I know).
So guess what?!?!
We now get to add another new doctor to our stable.
We are hoping it is no big deal. But for a kid
with his health history, we don't get to skate.
Kean's new Cardiologist ordered a heart monitor harness
me hold him down so the technician can
put the sensors in the right spots.
put the sensors in the right spots.
And he didn't fight it quite as much as I expected
The night was a bit rough (he woke up several times
to tell me "off").
But we completed the test without having to re-attach
any of the sensors. So that's definitely a win-win
in my book.
We turned it all back into the hospital yesterday.
And now we all wait.
We see his new Cardiologist on January 12th.
The fun sure never ends, does it!
Tuesday, December 27, 2016
I have long since given up trying to get Christmas Cards out in the mail.
(Thank you to all of you who do send them to us, we LOVE them).
Our cute neighbor cornered us into taking a few "snaps" one Sunday afternoon in our yard.
So this will have to do for our holiday greetings.
Happy holidays. How grateful we are for each of you,
for your examples of kindness, goodness and friendship.
And how thankful we are for a Savior who loves
May 2017 bring health and happiness to all of us.
Posted by Lonni Leavitt-Barker at 9:09 PM
Saturday, November 26, 2016
Nothing like blogging about our family vacation nearly two months after the fact!
It may not be timely but we sure had a phenomenal trip.
We went with our close friends, the Borup's to Montana.
We visited the old farm where Byron grew up...
We spent time with his mom, Grandma Kay
and some dear friends, the Morgan's.
We strolled the quaint streets of Byron's hometown, Big Fork.
And then headed up into Glacier Park for a couple of days.
We all had fun taking family pics with the stunning scenery
behind us in every picture.
The Borup's were so much fun to be with
and get this, they still are our friends after spending that
many days with us in our camp trailer!!!
We hiked up about half way to where Byron was chased
by a grizzly bear years ago. If you haven't
heard his crazy story, you should. That bear had him
and for some reason, let him go.
We also oohed and awed over
some of the sites. It was so pretty, it
almost looked fake.
We walked the shores of the lake in the rain.
But that didn't stop us from spending a good half hour
seeing who could skip rocks the farthest.
He loved, loved being outside
and got a good work out nearly every day.
We love visiting Glacier in the fall...
Even though several of the hotels and lodges are closed,
it is as if we have the whole park nearly to ourselves.
And there is a picture perfect picture to take
nearly everywhere you turn.
Outside the park, we visited White Fish Lake...
And Holland Lake.
Yep, that's right.
Holland has her own personal lake.
Or at least she thinks so.
We love Montana.
In fact, I think, Byron would move back in a minute.
Uh, not gonna happen.
I'd be the first white cross on the side of the road...
Gorgeous but too cold.
Monday, October 31, 2016
What a fun night we had tonight.
You can't tell from this picture but we really did dress Kean up for Halloween.
Our first stop? The Bodily's and before I could even get up to the house,
Kean had stripped off his monkey suit, walked into the "Gobily's" house
and started pounding down the candy.
Only problem is he forgot to take off the brown paper
around his Reese's Peanut Butter Cup-- and ate it too.
It sure didn't take long for Kean to catch
on to the fact he could get a treat at every house.
He quickly learned to say "Trick or Treat" and "thank you".
It did take him forever to catch on that he needed to keep
his costume on!
In fact, at our neighbor, Gina Kwid's house the ol' costume came right off.
And while he, yep, ate another piece of candy, I did
get a picture of these cute girls-- H, G, and R and their friends.
We always spend the first hour or so of the night visiting
a handful of our dear neighbors and friends.
We love that tradition.
You'd think with the slower start it would cut down on the candy grab--
unfortunately (in my book but not the kids), that's not the case.
They get especially spoiled and come home with more candy
than should be legal for a child to have!
Monday, October 17, 2016
Today was one of those days where if I let myself, I'd mow my fingernails
down to nothing.
We had Kean's cancer screenings.
And even though we are now just over a year out, it still scares
the spit out of me to have to wait for his results.
Kean, of course, wasn't nervous one bit.
In fact, he fell asleep in the car and snoozed through
much of our wait to start the tests.
It was kind of rude of us to wake him up just in time to
stick a needle in his arm for blood samples.
But he was a trooper.
If anything, he had a harder time holding still for vitals.
That is, until we gave him a little dog to put the blood pressure
cuff onto. He liked that.
The clinic was getting used to a new computer system
so we had an extra amount of waiting.
Kean just decided to look cute while we waited.
He kind of gets me with that toothless smile.
And all the waiting sure paid off.
Kean's counts are getting better and better
with each month.
In fact, drum roll please... we now only
have to go into the hospital for testing
every THREE months.
Christmas came a little early for this mama.