Monday, February 13, 2017
Excuse me while I scream.
We were back in the doctor's office tonight.
Kean has, yep, two more ear infections.
His third set in a months time.
Who knows if they are the same ear infections that never cleared up.
All I know is he's miserable.
Those are his toes sticking above his shoulder while we waited.
He's on antibiotic number three (a stronger one for a longer time).
and we've been ordered to see his ENT. Today's doc suspects
an underlying sinus infection is to blame.
Well at least we had a few days break.
We went up to Sun Valley for the weekend-- mostly
so I could testify at a hearing on behalf of Camp Rainbow Gold.
They are trying to build their own camp on a pristine
piece of property up a canyon.
Unfortunately, the uber rich neighbors don't want it in their backyard.
It was a long, long and depressing experience.
It's a good thing we made up for it in fun the rest of the weekend with the family.
The snow was unbelievable-- cars and homes buried.
We saw signs of avalanches everywhere-- even Baldy,
the big ski resort was closed down for a few days while they
set off charges to trigger avalanches.
We spent one day with our favorite Camp Rainbow Gold counselor,
Jaime and her family. The girls couldn't get enough of her
little baby, Maeve.
She took us up this amazing sledding hill...
where, I'm not sure if we talked more or sledded more.
That night we all relaxed at the hotel.
On Saturday, we took a leap and got Byron back in skates and on ice.
The last time he tried skating, he skewered his leg, got a metal plate,
10 pins and was on crutches for months and months.
He said it was playing with his mind-- but after a few minutes
he settled in and boy, did we have fun.
Kean sat in that little chair for a whopping 1 and a half hours
while we took turns pushing him around.
He was in heaven.
Hopefully, he's hanging on to all those fun memories while
he feels so lousy.
Monday, January 30, 2017
Happy Anniversary to this guy--
18 years- wow.
What we've been through is enough to fill
several books. But hopefully, we are better people for it.
Greer and Reese went all out and decorated our room
to mark the occasion.
Here's the sad part though,
Kean and I are both sick--
we stayed home today.
He with two infected ears and two infected eyes.
Me, a raging case of Bronchitis.
He's back on antibiotics (again).
I'm on codeine cough syrup and steroids to try and clear
up my cough.
Greer says I says I sound like a dying squirrel.
You can see our batch of drugs behind the pizza boxes.
Byron brought home Pizza Hut after I ordered Dominoes!
(This is even the shortened stack. We pawned off a pizza on the Bodily's)!
Kean and I did venture out of the house for his big cancer screens at MSTI.
I'd already cancelled a few times because of the flu so felt we should
try and make this one since by afternoon we were both feeling somewhat better.
Typical Kean-- he ripped off every mask-- so they kept us
quarantined into a room to do vitals, blood draws and the full exam.
All went well-- his counts are good-- even though they had
to take blood twice (they messed up his first submissions).
And the even better news-- we don't have to go back for another three months!
Wednesday, January 25, 2017
Gigi got braces today
and I think she looks adorable.
Okay, so maybe she looked kind of like a platypus during
the procedure but she looks cute now.
And here's my update on Kean's medical issues.
We drove through a snow storm (again) on Monday
to make it to the hospital for his meeting with
the Pediatric Neurologist.
In short, all is well.
Dr. Foy didn't find anything scary from his EEG and found
no reason why he had those two seizures.
So we are not going to do anything, we especially are
not going to worry and we hope we can be done with this nonsense!
Sunday, January 15, 2017
I'm hoping Kean won't remember how traumatic
it was for him to go through all this hospital testing.
I tell ya, I never want to go through it again. Holding him
down was traumatic for me!
As a refresher, Kean had a couple of seizures a month or so ago.
Lucky us, we got to spend the night in the hospital
to test his brain activity and his sleep patterns.
That miserable, miserable test showed he has moderate
sleep apnea and surprise-- his heart was stopping several times in the night
for two seconds or more.
That new, little trick earned us another trip to the hospital
to take home a heart harness monitor.
More fun times, especially in the middle of the night
as Kean woke me up time and time again to say "off"!
We finally got in to see our new Pediatric Cardiologist
(super cool Dr. Womack). We still have to wait
to see the Pediatric Neurologist and the Pulmonary Specialist.
We got the best possible news!
And I think Kean even sensed what the doc was going to find.
He ran more tests and talked our ears off...
But here are the cliff notes.
He said, and I quote: "Bottom line, your son has a good ticker".
In other words, this mama doesn't need to worry!
Now to get through the next two appointments.
And certainly hoping for the same good results.
Friday, December 30, 2016
You know how each anniversary has its designation: gold, paper etc.
This birthday, clearly is the food birthday.
Don't believe me?
Let's see, I started the morning off with Reese surprising us all with
homemade Blueberry Pancakes.
She had forgotten that two of my girlfriends were taking me out for
The afternoon was gobbled up (like that food reference?)
with taking the pups to the vet for follow-ups, a
shopping spree at the grocery store (more food)
and then dinner out with my 98-year-old grandmother...
my sweet mother-in-law...
and my wonderful parents.
Byron and the kids came too.
I don't know how we missed getting pictures of them.
But trust me, I need to be rolled up the stairs and into bed.
Oh, and feeling well loved.
Thanks for all the birthday wishes.
I have the best group of friends.
Wednesday, December 28, 2016
I've had so many of you ask if we got the results from Kean's
testing on his seizures.
We don't meet with the Neurologist for a few more weeks
but Kean's pediatrician called on Friday to say while he hasn't
gotten the official report, he did not see anything scary.
However, (and geez, doesn't there always have to be a however with
this kid), the sleep study showed his heart stopped several times
during the night for short durations (over 2 seconds is all I know).
So guess what?!?!
We now get to add another new doctor to our stable.
We are hoping it is no big deal. But for a kid
with his health history, we don't get to skate.
Kean's new Cardiologist ordered a heart monitor harness
me hold him down so the technician can
put the sensors in the right spots.
put the sensors in the right spots.
And he didn't fight it quite as much as I expected
The night was a bit rough (he woke up several times
to tell me "off").
But we completed the test without having to re-attach
any of the sensors. So that's definitely a win-win
in my book.
We turned it all back into the hospital yesterday.
And now we all wait.
We see his new Cardiologist on January 12th.
The fun sure never ends, does it!
Tuesday, December 27, 2016
I have long since given up trying to get Christmas Cards out in the mail.
(Thank you to all of you who do send them to us, we LOVE them).
Our cute neighbor cornered us into taking a few "snaps" one Sunday afternoon in our yard.
So this will have to do for our holiday greetings.
Happy holidays. How grateful we are for each of you,
for your examples of kindness, goodness and friendship.
And how thankful we are for a Savior who loves
May 2017 bring health and happiness to all of us.
Posted by Lonni Leavitt-Barker at 9:09 PM