Tuesday, March 31, 2015
Look at who is back in the saddle again!
Finally, we are through the drudgery of winter
and able to have horse therapy again.
My friend's son came and helped us out today...
and Kean was so very happy.
I secretly think he believes he is riding Maximus from Tangled.
After all, Maximus and Romeo are both white, neigh and snort a lot.
I have to admit I love it too--
out in the sunshine, running alongside Kean and the horse.
Fun with exercise thrown in.
Have I told you how my little adrenalin junkie
squeals with delight and giggles while we all try to
keep up with the trotting horse?
Monday, March 30, 2015
What a Spring Break we've had--- we played hard at the lake
for the first few days and then nearly killed ourselves off the second half.
My dear husband (many of you know I call him McGyver- because he
can do everything) decided we were going to refinish our wood floors.
Holy cow-- what a lot of work!!!
Our wood floors actually are an old gym floor from a high school
in Arizona-- true hard wood, and I mean hard.
We sanded on those darn things for years it felt like.
We put not one, but two coats of the hardener on it, plus
the top coat (with sanding and cleaning each time in between).
Let's just say we put in some incredibly long hours and I'm pretty
sure I won't be able to move tomorrow.
We also carted the kids over to my folks house and ended up
staying there-- due to the mountains of dust and the
Last night we celebrated my dad's birthday and the birthdays
of my parents' neighbors-- Janice and Bob.
(Janice is our dear miracle-- she wasn't supposed
to survive her cancer and yet is still with us and fighting hard).
And as if we don't have enough on our plates with cleaning
everything-- and I mean everything-- and moving it all back
into the house... we had to move Sadie and her baby, Rudy
down to the back pasture with the other cows.
I swear it is a good thing there aren't cameras to capture
all of us chasing and hollering after these dumb cows
trying to get them to go where we want.
Thankfully, we got them in with no extra drama
and it was crazy watching all the seven of the girl cows
we have chase Rudy around and check him out.
Byron, of course, said that is exactly how he and Kean
feel all the time- since they are "ladies men".
I guess that makes us the chasers.
Tuesday, March 24, 2015
What a mean mom I am-- scheduling doctor's and dentist
appointments for the girls during Spring Break so they
don't have to miss any school.
The good news is all three girls made it in to the
"Cavity Free Club".
Kean stayed with Grammy and Grandpa-- kicked
back and watched his Tangled.
Love these good days for all.
Monday, March 23, 2015
It is Spring Break for our girls-- and we promised
them we'd play a bit and then work a bit around the house and yard.
So off we went for a long weekend to the cabin at Lake Cascade.
Kean kept us entertained in the car with his master yoga moves.
Oh to be so limber.
It was gorgeous up in the mountains
for most of the time.
Kean got such a kick out of feeding Reese
on the porch.
We had a bit of a struggle getting him to eat consistently.
I'm guessing he was just out of his element and will
get back to normal now that we are home.
And while Kean can't go anywhere near the water
the girls... that's a different story--
even though it was freezing.
Don't ask me how but they found bait, a hook, a weight
and some old tangled fishing line
and decided to try and catch a fish.
We spent way too much time untangling fishing line
and tying on the old bait and hook.
manipulated talked Greer into wading out into the lake
and tying off their fishing line to a piling.
They were oh, so determined to catch a fish.
They went back today before we left
and I know you will find this shocking-- but they did not
catch a fish.
They can't wait to try it again next time!
Friday, March 20, 2015
Aye yai yai... my girls are growing up too fast.
Tonight I dropped Holland, Greer and our neighbor Jaymie
off at "Teen Night" at their middle school.
How can this be?
And yet, while I'm thinking they are so grown up-- I was at the grocery store
tonight and get a very panicked phone call from home
telling me they had an emergency.
Could Dad and I get home RIGHT NOW!!!
I guess Kean had a blow out of somewhat epic proportions.
By the time we made it to the house, they had everything
under control-- Kean cleaned up, bathed, in new pajamas
and even his hair combed.
So back to my initial statement-- these girls are growing up
too fast (and sometimes, that's a very good thing).
Tuesday, March 17, 2015
So the good news is... Kean turned a corner and is finally feeling his old self.
The bad news is... he woke up at 1 a.m. and didn't go back to sleep
until 4:30 a.m.
Which, if I must interpret, means, no sleep for his mama
and not much for his pops.
Then he was up again a little after 7.
He sure doesn't sleep well when he's on that drug.
And I sure as heck didn't know what to expect from him
for Speech Therapy today.
Get this, he dazzled.
Probably his best ever.
(However, I yawned all the way through the session).
This was him after nap time (for both of us).
We decided he makes a pretty cute Leprechaun.
Happy Saint Patty's day from Keanut McBarker.
Saturday, March 14, 2015
Long few days hunkered down with the Keanut man.
Poor boy just wants mostly to be held.
If he wasn't so miserable, it'd be such a sweet experience--
getting to cuddle all the time.
You have to watch this video.
Here's the background.
Kean is on a boatload of medicine and most of them
he takes like a champ.
However, there is one drug-- his Steroids that are horribly bitter.
Most of the time, when he takes it, he shudders and groans--
just like he's turning into the Incredible Hulk.
It is hilarious to watch.
Here's from tonight at dinner:
Thursday, March 12, 2015
I guess the best way to describe Kean today is partly cloudy.
He had moments where he giggled, laughed, played and felt fine.
And then he had patches where he whimpered and just wanted
to be held.
We did get a decent amount of food down him-- so that takes
away some of my stress.
First thing this morning, we dropped the girls off at the bus stop,
took the paper up to Grandpa Bodily's-- where Kean walked inside,
ditched his jacket and shoes, helped himself to the yogurt in the
refrigerator and walked over to the breakfast table.
This morning he surprised us-- he got a yogurt out --
one for him and one for Grandpa Bodily.
This evening we all headed over to the Moomey's house
to celebrate Ron's birthday.
Elly (an amazing cook) made a scrumptious dinner
and a dark chocolate and ganache cake.
So many candles-- Ron had to have some help from the Barkettes.
Then that crazy Elly had to keep up tradition and help the
girls polish their manners at the dinner table-- with the ol'
whipped cream with dessert lesson.
Finally, we kept Kean from focusing on feeling icky
by feeding Pete jerky treats.
It worked great.
Gotta remember that little trick.
Wednesday, March 11, 2015
We have another hard Chemo day under our belts.
We are steadily rolling toward that September 13th end date.
Today our Chemo date was Shawna Hill-- she is wonderful
and was sure a delight to spend the day with.
Kean did great, he wasn't even too grouchy about having to fast.
The procedure to put the Chemo into his brain and spine only takes
about 15 minutes once he's under.
However, I couldn't get Shawna and I out of there fast enough.
I can't handle watching the procedures.
What seems to always take the longest is waiting for Sleeping Beauty
to come out of the meds.
Once awake, he tanked down cheesy eggs, bacon (no surprise)
Which is a good thing since for the next few days, he likely won't
want to eat a thing.
That of course will all change once those lovely Steroids kick in
and then he'll be eating us out of house and home.
What a crazy ride we are on.
So glad we are inching closer to the time when
we get to climb off!!!
Tuesday, March 10, 2015
Ah, are we ever worshiping the sun over here.
A perfect 71 degrees today-- can't order up one much better.
When Kean walked with us down to the school bus, he stopped
dead at the shed at our neighbor's- Grandpa Bodily's house
and wouldn't budge.
Of course, this is the same shed that houses the ol' lawn mower
he is so very fond of.
Lucky for us, Grandpa Bodily offered to take Kean for a spin
on the chariot (so I could go vote on the school bond).
Let's just say we had two very happy boys who tooled around
the neighborhood (put putted might be a better description).
I do believe Kean would live outdoors if allowed.
And I do believe, she'd live on snow cones
Tomorrow's another big day for the warrior boy.
Sedated Chemotherapy at the hospital.
Dreading it big time-- but also looking at it
another one down and another month closer to being
Friday, March 6, 2015
Long day for the Keanut man.
He had three therapy sessions at his little therapy school.
From there, we raced home, scarfed down some lunch,
picked up Elly Moomey, stopped by his Orthotics doctor's office
to get fitted for his new foot braces
and then headed to the hospital.
We had been asked way back to take part in a video St. Luke's
was shooting to be used for a donor appreciation dinner and an accreditation
The video is a tribute to the outstanding nurses who make
St. Luke's a special place.
Of course, we have many, many nurses we adore-- but told
the producers about three nurses in particular we especially love.
So today, they had us and these three nurses come down to the
cancer clinic for interviews and video.
Silly me forgot to take any pictures of our part-- but here's
as shot of an interview as we were leaving.
We talked about Liz-- my favorite nurse who took care of me
when I was on bed rest on the second floor for those 75 days.
(She also delivered Kean).
We then talked about Joe-- who was so cute and went above and beyond
in taking care of all of us when Kean was so sick and fighting for his life
after his diagnosis.
And finally, we focused on Penny, the nurse in the cancer clinic we
refer to as the "Chemo Queen". She sings and dances for Kean
when they are accessing his port or administering Chemo.
These nurses have all made such difficult experiences as pleasant as possible.
We love them and were excited to give them some recognition
for all the extras they've done for us.
And yet, the woman in charge of the project surprised us with a large
gift bag for our family as a thank you.
Talk about spoiling us-- the girls were thrilled.
Kean was in bed-- he literally cried from
about 5:30 until 8:30.
I'm hoping he was just exhausted from his big day and
from missing his nap.
There should be something in this pile of goodies
that will make him smile tomorrow!
Wednesday, March 4, 2015
I must have some rebel blood in me
because Kean is supposed to be wearing a hearing aid on his right ear
and I'm lucky if I have enough energy (or care enough) to put it in.
His hearing loss- supposedly is minor-- so minor, he doesn't see the benefit
and neither do I. I just see the struggle. He hates it.
And in my book, he has enough on his plate, so I don't push it.
Well, today was reckoning day.
He had a hearing test (torture on the level of Guantanamo Bay).
Let's just say he didn't do too well.
Really, I should clarify-- he didn't cooperate.
In fact, the doctor is looking into having a brain mapping
hearing test while he is sedated for Chemo next week or
the next time.
He couldn't leave the hospital today fast enough!!!
While Kean napped this afternoon, I got to go down to Reese's
third grade class to watch her dazzle.
The children were assigned to read a biography,
write a speech as if they were that person and then dress up
and give the speech.
We read four books and Reese picked Cleopatra.
She loved all the wars, the forced marriage to her little brother,
the death of Julius Caesar, Mark Antony killing himself by sword
and then Cleopatra killing herself with a poisonous snake--
it read like a movie script.
She memorized her entire speech and rocked it.
It was actually quite entertaining to hear all the other speeches.
The kids up today-- Einstein, Helen Keller, Sacajawea, Bill Gates,
Katy Perry and our little queen of Egypt.