Thursday, February 27, 2014
Wednesday, February 26, 2014
Tuesday, February 25, 2014
Monday, February 24, 2014
Sunday, February 23, 2014
Saturday, February 22, 2014
Friday, February 21, 2014
Thursday, February 20, 2014
Just a quick update.
I'm too tired to do much more.
I did hear from the Pediatric Neurologist's office today.
Ladies and gentlemen-- we have liftoff: an appointment
for Monday, March 10th.
Meanwhile, Kean's Pediatrician (Dr. Sandstrom) called me
from her home on her day off to talk about Kean's episode.
I told her about my research on the Internet and what makes
most sense to me-- and get this, she agrees.
So for those of you who find this medical stuff interesting--
here's the theory:
I found a paper about a 4 year old boy with Acute Lymphoblastic Leukemia (Kean's Cancer) in the same phase as Kean's in, taking the same drug each night. This child was having seizures brought on my severe Hypoglycemia.
I looked up the symptoms for severe Hypoglycemia and they sure fit his symptoms.
Dr. Sandstrom looked up his glucose levels from the E.R. and they were just barely in the normal range: 65 (normal is 60 to 100).
Plus, on the other three occasions, he came around slowly but surely after I gave him Pediasure and whole milk.
When I took him to the E.R., they wouldn't let me give him anything to eat or drink until they ran some tests-- and boy, did those symptoms hang on.
So maybe, just maybe we are on to something.
Of course, there's nothing I can do or give him to prevent another episode. So it probably doesn't matter what it is.
We see his primary Oncologist on Tuesday. We'll see what he has to say.
Wednesday, February 19, 2014
Tuesday, February 18, 2014
Monday, February 17, 2014
Sunday, February 16, 2014
Saturday, February 15, 2014
Friday, February 14, 2014
Thursday, February 13, 2014
Wednesday, February 12, 2014
Tuesday, February 11, 2014
Whew, we had a busy day.
Kean had therapy first off- -- speech and did moderately well
(if you don't count him throwing items). Sigh....
Then he went to hang with Grammy while I had a big meeting
for Baldapalooza and Camp Rainbow Gold.
Our music options are ever widening and that's exciting.
I'll let you know as soon as we have our headliner booked.
I also found out I'll be speaking at Camp Rainbow Gold's big
fundraiser: Share Your Heart Ball in Sun Valley
at the beginning of March.
Just pray I can make it through the speech without getting
If you'd like a glimpse into a tiny bit of what Camp Rainbow Gold
does for cancer kids, cancer siblings and cancer families you can
watch this short video.
I think you'll especially enjoy the first clip in that it is Reese mugging for the camera.
Holland is in there too... later on dancing.