Kean is six weeks old today. Hard to believe that if you add up the six weeks I've visited him daily with the 11 weeks I stayed there-- I'm now at 17 weeks of being at St. Luke's each day. That's insane. Thankfully, I'm not. Yet.
Saturday afternoon, Kean had his car test. Basically, they buckled him in and had him sit there (all wired up to monitors) for 1 hour and 30 minutes. He passed, barely. But he passed. So check that off the hurdle list.
After we made it through that, we moved into our room in the NICU. My sister-in-law, Rachel sent a packet of placards with each month printed on it-- to show his growth. So I had to take a picture (since he's already 1 1/2 months). He's changing daily and what a cool way to show those changes.
Anyway, the night of rooming in was a disaster. He chose that night to have an unbelievable amount of oxygen de-sats. His alarms went off ALL NIGHT. I swear, being generous, I probably got a whopping 1 hour of sleep. So Dr. Snyder came in the next morning and told me we had 3 options: 1. room in again and see if he just had a bad night. 2. put him on medication (Caffeine) to help with his immature breathing and send him home in a few days with monitors or 3. conduct a swallow study (give him bariatric medicine and then shoot a series of x-rays that show if he is having reflux or is aspirating). I chose to go through a second night of torture-- rooming in.
Last night was a lot better. I got probably 4 hours of sleep (good practice for when he comes home, I guess). He still had his desats-- but not nearly as many. So here's the plan. They put him on Caffeine today and now have to watch him for two days. They think I'll be able to bring him home in two days-- on the medicine and on monitors-- monitors we hear sound about as lovely as a smoke alarm going off. Byron will have to figure out a way to somehow muffle the alarm. If I have three girls waking up with me each time the alarms go off-- I'll go off.
9 comments:
YAY!! Hope he's home soon!
Too bad about your first night rooming in. With my babies, my goal was always 4 hours ... if I didn't get 4 hours I knew I was going to be a mess!
Also, those are some delicious chubby cheeks & just love Rachel's card idea ... she is so creative!
Kean looks happy and he truly looks like he's progressing. He's getting very close to joining his sisters in creating more joy in the Barker household!
Love, Cindy
Congratulations! Kean and you are cruising right up life's highway! I'm excited for you. :)
Best wishes on... Wednesday?
Progress, Lonni! Can you believe that you're going to have your little cutie home so soon?! Congratulations!
Wow, he's sure looking like he's filling out a bit. (unless the pictures are deceiving.) Very cute!
I havent had internet and was excited to finally get on and see that you had such a darling little boy! It is amazing what you have been through. I am glad to see he seems to be getting stronger. It is so fun to have a different sex to mix things up a bit!
Oh Lonni, I remember those alarms. They went off a lot when CC was hospitalized with RSV and Pneumonia. Hard to get sleep with those buzzing... Not to mention the stress.
When CC went home I wished I could take that machine home with me. I remember thinking if I was Tom Cruise I would just buy one. ;) CC ended up sleeping in our room a lot.
Glad he gets to come home soon. Very exciting!
He is so adorable. I can't get over how tiny!!!! Good luck on getting him home.
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