From 0 to 50...

Our day went from normal to insane in a blink.
Kean was low energy until his favorite therapist and
probably favorite visitor in the world (Maureen) came by.
He was so animated for her... copying sounds and gestures. 



 Take a look at this video of the two of them looking at his favorite animal book.

He made more sounds today than he's made in months.

 

 Just as Maureen left, the home health nurse arrived to give Kean his Chemo.

Only, this time, if you look closely, you can see blood in his port tubing

and wouldn't you know it, she couldn't get it to flush or return fresh blood-- it was clotted.

 The poor nurse tried and tried but to no avail.

So after a phone call to the Cancer docs, we packed up and headed down to,

yup, you guessed it, the hospital.

They were worried that he had a blood clot around his port (since he

has a history of clots).  I was trying not to freak (it had been an emotional morning--

our little friend, Audrey -- in the hospital-- and just like Kean with Down syndrome and Leukemia

got some pretty depressing news this morning).

Once at the Cancer clinic, things were weird but not so bad.

The needle in his port had somehow gotten bent.

Probably from something as simple as climbing up and down from the couch.

He had crusty, dried blood all behind the needle apparatus.

So they pulled it out, cleaned him up, put numbing cream

on him and let us wait for about an hour

before re-accessing him and then giving him his Chemo.

Thank heavens all of that went smoothly.  That's the good news.

The bad news is, he was slightly swollen so they had to use a much longer needle...

a needle they didn't dare leave in.  So they had to take it out when they were done

today and we have to turn around and go back in tomorrow for his next (and final)

dose of Chemo through a port (for this round).  In other words, I cancelled the home health nurse.

We did run into our other favorite Chemo patient... Kendra and her sister Kaitlyn.

That always makes our day.

And we love seeing her new curly hair.

I guess before she lost all of her hair it was only slightly wavy.

This crazy Chemo.  I've told you Kean's hair (he's losing it again) was coming

in much blonder. 

 A huge, huge thank you to Cindy Jones... who literally dropped everything

and met this most wimpy mom down at the hospital so

she didn't have to wrestle Kean all alone.

 We must not have sucked her too dry.

She's going to be our Chemo date again tomorrow.