Reincarnated As A Mother

Showing posts with label seizures. Show all posts
Showing posts with label seizures. Show all posts

Tuesday, April 14, 2015

Some Answers

We had another doctor's appointment.
I can't complain about this one.
Kean didn't have to have any tests, get any shots
or give any blood.
In fact, it went about as well as a doctor's appointment can go.
We saw his Endocrinologist-- the doc who is trying to figure
out why Kean keeps having those Hypoglycemic seizures.
Typically we see them when he doesn't eat well, then takes
his nightly Chemo (which he has take fasting at night).
Then he won't wake up in the morning, is sweaty, clammy
and totally non-responsive.
It is incredibly frightening but now that we know it is caused
by low blood sugar when he doesn't eat, it has eased the fear a bit.
(I still am spitting adrenalin trying to revive him each time it happens).
Anyway, he's had several of those episodes, especially just after heavy Chemo
when we can hardly get him to do anything other than cry-- let alone eat.
 Kean threw me for a loop a month ago when he ate a ton of food at dinnertime
and then wouldn't wake up the next morning and had all those 
horrible symptoms/side effects.
Dr. Flynn put me at ease today with his thoughts that there is not something else
wrong-- but that his body is just under so much stress with the cancer that
he can't hang onto any extra energy to keep his levels up during the night.
The doc assured me this problem will likely go away once he's done
with Chemo.
Yippee!!!  Another huge reason to celebrate come September.
We did, by the way get a prescription for- and in - office training
on how to give Kean a shot in the leg to get him to come around
when he is non-responsive and won't drink orange juice etc.
Joy, another prescription to pick up (and add to our impressive collection).
Meanwhile, tonight was Holland's Medical High School's orientation.
I'm still in shock she'll be in high school next year.
Greer went with us-- and was more than willing to pose
in the perfect light after our storm.
 She's a keeper, I tell ya.

Saturday, March 15, 2014

Heart Failure (again)

Talk about timing.
Guess who had another one of those episodes (possible seizures)?
I half expected it-- he was so exhausted yesterday he hardly ate anything.
I went to get him up this morning and once again he was completely
limp and lethargic.
We videotaped him to show the Neurologist.
Honestly, he didn't seem quite as bad this morning as the past four times--
this time he at least responded with his eyes.
We pricked his finger to take blood-- and he didn't even react.
The Glucose monitor showed his level at 45.
The Neurologist had told me on Monday that he couldn't say at
what level Kean would have a "seizure" it depends on the kid-
he said it could be at 50 or at 40.
We'll see what he says next week.
We gave Kean some glucose gel and immediately fed him some Pediasure (high calorie milk)
 It took him about 45 minutes to perk up and pull out of it.
 But perk up he did.
By the end of the day, he was back to his crazy self (surrounded by
the girls and a few friends).
To see him now, you'd never in a million years guess
he'd given him momma such a scare this morning.
Crazy kid.

Monday, March 10, 2014

The Meeting of the Minds

Kean had his big Neurology appointment today,
ya know, the one with the new doctor who was described to us
as the 'arrogant butthead'!
Actually, he was just fine.  No complaints from me.
You can tell he's heavy on the smarts and a little less so on the personality... but he was fine.
So here's the scoop:
Kean is at a higher risk for seizures because
a.  he has Down's.
b.  he has cancer
c.  he's on a boatload of drugs that can trigger seizures.
The doc thinks he has most likely had four seizures and we just happened to witness
the aftermath.
He was very open to my theory about it being a seizure induced
by a severe Hypoglycemic episode brought on by one of his Chemo drugs.
If you even followed that....
Anyway, the doc set us up with a Glucose blood monitoring machine
(the kind that Diabetics use).
Nurse Carla came in to train me on how to lance his finger, put the blood
on a little test strip and put it in the machine.
The nurse is the one who pricked her finger to show me how it works...
that's probably why Kean has such a broad smile and she has a pasted on one.
What a trooper.
We're ready if he has another seizure.
Meanwhile, on Friday, Kean has an EEG scheduled.
Get this... we have to keep him up two hours late Thursday night.
Wake him up two hours early Friday morning.
Make sure he has a full tummy and does not fall asleep
before his big test at 11:30 a.m. on Friday.
The theory is he will be nice and mellow for the test.
Yeah, right.
He'll likely be a raving mad man.
Anyone crazy enough to want to come along?
I'm thinking it will be a lot like herding a wild alley cat.