Reincarnated As A Mother

Friday, March 29, 2013

A Milestone

Kean and I celebrated tonight with a walk and a yummy dinner Elly Moomey brought over.
Byron and the girls are still on their camp-o-rama.
We had Chemo today...
a Chemo treatment that's quite significant in our world.
Kim Leach was our fun date at the hospital.

Today marks the final day of all the hard core Chemo phases.
We get two whole weeks off before starting the Maintenance phase..
the phase we've been pacing ourselves and praying that Kean would be
strong enough to make it to.
He will continue to get Chemo until September 13, 2015... but some of
the more wicked Chemotherapy drugs (the ones that make his hair fall out
and send him to the hospital etc.), are behind us. 
Dr. Camilo told us that a lot of parents fall into a depression
when they finally get to where we are.
My dear cousin who went through this same trial with her daughter
put it like this.. she said so many months are spent in survival mode,
just trying to operate under such extreme stress that when you finally
get to this goal of Maintenance-- you collapse from the sheer exhaustion
of the intense pressure of trying to keep your child alive, minimize his pain and
hold the rest of your family together.
I have so much support and I've had that support all along this journey,
that I think I'm in a pretty good place to handle this transition.
We still have a long, icky haul but I firmly believe the worst
is behind us.
By the way, Dr. Camilo told us today that Kean has done "much better
than he ever expected".  Dr. Camilo is a man of few words...
so coming from him, that was huge.
We have so much to be thankful for, don't we!

2 comments:

Anonymous said...

Congratulations to all of you -- especially Kean! -- on clearing that hurdle. What a little miracle man he is!

We will continue to pray for you through the maintenance phase, and know that your amazing family can rise to the challenge of whatever the 'new normal' stage brings.

Thank you for sharing this incredible journey with us. xo

mazie07 said...

Kean is such a miracle boy! What a huge community of faithful believers flooding the heavens with prayers for this beautiful boy. Our Father has certainly blessed these prayers! Yay Keanut!!