Some Answers?

Well, we finally saw the specialist today-- the Endocrinologist.

Dr. Flynn was extremely thorough-- we not only talked extensively

about his episodes that mimic Hypoglycemic seizures but also discussed

Kean's entire medical history.  And as you can guess, that

took forever.

 In a nutshell, he thinks my theory is probably right on--

that the Chemo he takes fasting each night is too hard on his little

body and that his liver probably doesn't bank enough sugar (?) to

get him through some nights.

He's gonna run a bunch of tests with Kean's blood when we have Chemo

next week.  He wants us to try adding a prescription non-refined corn starch

into his meals -- that will take longer for his body to break down.

If that doesn't work, our least resort will be a night time feeding.

One other interesting development came out of today's 

appointment.  Kean has been on Thyroid medicine 

since he was an infant.  Dr. Flynn told me today, that

his Thyroid medicine has basically been worthless.

Since Kean can't swallow pills, he's been taking a compounded

liquid.  Dr. Flynn said that it is impossible to get Thyroid

suspension stabilized and that Kean likely has only been getting

a whopping 25 percent of the med.

I'm thinking this could be good news.  Regular tests

show his levels have been fine-- so if he's not getting the

right amount of medicine, I'm hoping maybe we can drop

this medicine from our long list.

Wouldn't that be great?