Decisions, Decisions

Do you ever have days where you would give every worldly possession

for three days of solid, uninterrupted sleep?

Yeah.  Me too.

We spent the morning at the hospital.

My wonderful friend, Linda Steven's was today's date

(and honestly we could've used a few more hours to get caught up).

 So here's the scoop.

Kean's counts are down.

He's at about 700 and they'd like him to be between 1000 and 1500.

However, he wasn't low enough to cut his daily Chemo or lower the dosage.

So we just keep plugging along.

We had a long meeting with Kean's main doc, Dr. Camilo.

He wanted us (Byron and I) to go home and decide what direction we will take for the next 2 1/2 years.

 To put it in a nutshell, one option cuts down on the amount of Chemo and Steroids he

would be on-- to help cut down the chances of a toxic reaction.  But with no data to

show how Down's kids do, we don't know if the Cancer will stay away.

So we opted to stay the course and hope our boy continues

to do well.

It is stressful when you have your child's future at stake.

I pray we made the right decision.

On a brighter note,

we ran into one of our favorite friends at the hospital today--

Little Audrey and her mom, Amy from Twin Falls.

Audrey, if you remember, has Down's and was diagnosed

with A.L.L.-- just like Kean, a month before she turned 3.

She looks great and somehow is hanging on to some of her hair.

 They seemed quite intrigued with each other...

that is, until Kean tried to grab a handful of Audrey's hair.

I think he has hair envy.