Road Trip

Clearly we are not as young as we used to be.

Get this.  We got up at 3:30 a.m. Saturday morning, drove

down to Salt Lake for Mark and Nicole Moomey's wedding,

hit their reception that night and then drove home.

We are paying for it today.

But, I must say, it was totally worth it.

Mark is like a big brother to the girls-- part of the family-- and he

also worked for Byron for many years.  We love this guy (and his bride).

We started (after driving) our morning with a family brunch.

Kean ate us all under the table.

He sure has his appetite back and has "made friends" with food again.

 Here is Mark and Nicole as they walked out of the temple--

shortly after being married.

It was a lovely, lovely ceremony.

 What made it even better (for me) is I ran into this guy-

he's a few years younger but grew up with me in Vegas.

Nathan Henderson's wife is the sister of the Bride's mother.

Small world, eh?

 We had a grand time at the reception that evening.

Kean was pretty good (thankfully he got a 2 hour nap)

and was totally into the dancing part of the reception.

 It was so worth driving with the kids in the car back and forth.

They were wonderful and we all loved being there for these two 

we hold so dear.

 Every one is in bed as I write this-- and I'll be there in a few

but we did have enough energy to play a rousing game

of newspaper "snow ball" fights.  Reese made snow balls

out of newspaper, set up boxes and divided us into teams:
Grandma and Byron vs. Lonni and Reese.

 We had to see who could get the most snowballs into the

other team's box.

I'll save you from having to tune in to ESPN-- ha, ha.

Reese and I smoked the others-- 10 to 4.

Whoo hooo!

Black Magic

Zany might be the word for the day.

Byron went in to give Reese a hug goodbye before he 

left for work this morning.  As he stuck his arm

under and around her pillow-- he found this-- a metal spoon.

Reese was pretty groggy but Greer was happy to answer

his question as to "WHY?".

(Because, if truth be told, she had one under her pillow too).

Evidently, they somehow got it into their heads that if they "kissed

a spoon and slept with it under their pillows" -- today would be declared

a snow day (no school).

Um, didn't quite work.

But, seriously, where do they get this black magic stuff?

We about died laughing.

Kean got to wear pajamas to school today.

I'm certain as I changed him out of the pajamas he slept

in-- into another pair of pajamas, he thought I was crazy.

It was Polar Express day in his class--

and look at this cute picture his aid sent me of

the boy with the conductor.

Whirlwind

Kean has done remarkably well in the healing department.

In fact, I only gave him pain meds for the first day

and he went to church yesterday and school today.

He's such a stud!

We've been busy.

I guess I should say, who isn't?  It is December, after all.

Greer and Reese joined three of our neighbor girls

to play elves at the nursing home.

Grandpa and Grandma Bodily (the Gobily's)

serve as Santa and Mrs. Claus each year.

 The girls were quite the talented elves.  Not only

did they pass out candy canes to all of the folks, they

serenaded them with several Christmas Carols.

 I just had to include this picture.

Aren't they the cutest?

I was asked to give a speech to about 150 women

at the Crane Creek County Club.

It was so much fun.  I didn't have to prepare a lick--

I was asked to share our Make A Wish trip.

At each of the table settings, they had a little card

telling the story of some of the Make A Wish kids--

including Kean.

 This was the group of ladies I sat with for the lunch

portion of the event.

It was so fun to get out and we raised enough

to grant two children their wishes!

 And finally, Greer had her school's holiday concert.

Remember, she goes to the Fine Arts school and is a 

"vocal major".  

She was selected to do a duet with another student--

and I have to say (and really, it is not because I am biased)

she and her friend were one of the very best.

 There were lots of great numbers but Greer and Nicci

sang their hearts out and had fabulous stage presence.

It was so great to see Greer 100 percent in her element.

The Third Boob Is History

Ah, Kean is one brave boy.  Either that, or he is completely numb 

and checks out each time we are in the hospital.

 He breezed through today's surgery.

Probably, because we had Grammy along for moral support.

 He had to wait (fasting) for hours before they came for him.

They let me dress up in what looked like a garbage man suit,

go back in to the operating room and hold him until he got

enough gas and was out.

 His surgeon said all went well and he came out of the anesthesia

with no problems (just an extra dose of grouchiness).

Oh and did I mention he was hungry and thirsty--

4 pieces of bacon were the appetizer.

 I thought you'd like to see what his ol' port looks like.

The purple part with the rubber insert is what caused the bump in his chest.

Then, the tube (it is cut short) threaded up his chest and connected

up near the right side of his collar bone to the main artery

that leaves the heart.

Much of his Chemo was administered through

this little device.

It will make a great show and tell some day.

Finally, a memory I'll want to hold on to forever is this:

as we were leaving this morning Reese got up early to smother Kean

with goodbye kisses.

She told him when he comes home tonight, he won't have his port anymore,

he won't have cancer anymore but...

he will still have Down syndrome.

It was hilarious.

That girl.

The Results

Well did we ever start today off with some excitement.

About five minutes before Kean's bus came, his very first tooth

decided to exit his mouth.

I think Kean was a bit perplexed as to why Reese and I were 

so very excited.

 This afternoon we had his monthly testing at the hospital

to make sure that ol' enemy-- cancer is staying away.

Since this will be his last time using his port (he has surgery

on Thursday), I thought I'd walk you through how it all works.

After we numb it up at home and the nurse takes off

the "sleepy cream", she has to clean it with a very stinky

astringent.  My dear friend Pam Brown went with us today

and as you can see has to hold his hands and head up and away.

(We actually had to sanitize his chest twice because Kean licked it.

Ewww.  Gross-- if it tastes anything like it smells!).

 The worst part is usually inserting the thick catheter needle--

I don't think it really hurts him-- it is probably just some pressure.

But basically, inside his chest (we call it his third boob) is the port--

which I like to think of it as a rubber filled thimble.  The port

is connected to the main artery leaving the heart-- so all the Chemo

he used to get would go right into that main artery.

In today's case, we used his port just to get blood for all the 

tests they ran.

 However, once again, his port decided to live

up to it's nickname:  Persnickety Port.

He probably had some clotting or film grow over the port--

so the poor nurse could not get any blood- no matter

how hard she tried or how many different positions we put Kean in.

 Even though we earned an extra hour to our visit

(they had to order and administer an anti-clotting drug- TPA

and then wait for it to work- which it did), Kean was soon

all smiles.

 Love this picture-- gappy smile and all.

 Miss Jen- his favorite Child Life Specialist (it is her job to play with

the kids) gave him a darling red sweater as part of the Red Dress Project.

A little girl died of cancer a few years back.  This little girl

LOVED everything about red dresses.  When she died and her friends

asked her parents what they could do to help-- they answered donate red

dresses.  They now give out hundreds of red dresses each holiday season

to little girls fighting cancer and red sweaters to little boys.

By the way, that hard to get blood carried good news.

Kean's counts are looking good.  No worries and his immune

system is slowly starting to build.

Here, here!

A Little Snow and A Little Surgery

We had a little weekend escape up to the mountains

and Lake Cascade.  Here's our view from the cabin--

gorgeous, just gorgeous.

 I don't think the Barker's can do boring.

Reese let Greer bury her in snow (for 40 minutes-- she swears

she was cozy warm)-- all on a dare.

 Everyone went out for an afternoon of snow mobiling.

Byron took Kean for about twenty minutes.

 The girls (and our friends the Borup's) were on other sleds...

 Kean LOVED every minute of the "cold" snow cycle ride.

And let me tell you, he was one unhappy puppy when

I took him back to the cabin for a nap while the rest of the gang

went on a snow mobile adventure.

 You know it was a good trip when the kids come back to 

our home and we find them snuggling on the couch- out cold.

By the way, we have a big week this week.

Tomorrow (Tuesday) Kean has all of his monthly

testing at the hospital to make sure that evil cancer stays away.

And then on Thursday, it is surgery time.

He is getting the port taken out of his chest.

Big, big day.

Blossoming

It has been cold, snowy or rainy here.

Quite a shock to the ol' system after the sweltering humidity of Orlando.

But I thought I'd update you on Kean after

completing his first full week back at school.

(Plus, I had to grab this picture that actually shows

him with his hat ON-- he hates hats, gloves, shoes....).

 Kean had his best week yet.

Every day his aid, "Baker" sends home a form

she fills out that tells me what he ate, how many diapers

he had changed, what he worked on, what type of

therapy or special he had etc.

This week, for the first time ever, every day

had a good or great note.

He's starting to follow directions and class routines.

And here's the biggie-- a whole week without

pinching, pushing or pulling another child's hair.

 He's even making friends.

This week, he was invited to a birthday party (dang, can't go)

and this little homemade horse came home in his back pack one day-

from a friend in class who made it specially for Kean.

Doing a little happy dance over here!