Saturday, February 25, 2017
Friday night we had one of our best evenings of the year.
Boise State's Dance Marathon is something we look forward to all year long.
Hundreds and hundreds of students dance all night to raise money
for St. Luke's Children's Hospital and the Children's Miracle Network.
Kean's been one of their "Champion" children since they
started this event at BSU five years ago. Of course, this
was only his second year he was well enough to attend--
and just look at him up on stage with some of the other honored
kids and some of the dancers.
Part of what makes this so fun, is we've grown to love
many of these students. Here the kids are reunited with
Kendra from last year. We adore this girl!
In the hopes of getting the students motivated to keep dancing,
they had our family (and others) get up on stage and tell
Kean was so great on stage-- totally comfortable
and even babbled something into the mic.
They lined up the portraits and stories of all of the honored kids.
I had to stop myself from stealing Kean's and taking it home--
it was so cute!
They did let us take home the posters where the kids
wrote the kindest notes to each of the children.
It is such a fun event-- lots of food, treats, visitors---
Kean was quite intrigued by the giant cow.
I'm not sure what a cow has to do with the Boise State Broncos,
but Kean loved playing with the poor guy.
Of course, there was a lot of dancing.
One of my favorite moments? Reese dancing with Kean.
She weighs a whopping five pounds more than he does.
I loved this coed- who came over, plopped down on the floor
and hung out with Kean for about twenty minutes.
In fact, that's one of the things we love so much-- we must have
been hugged by at least a hundred students. They are so great
and friendly with all of us.\
This is a picture of our dear friend, Drea-- the student who heads
up the entire Dance Marathon.
Everyone paid a buck to put a piece of duct tape on her
to strap her to the wall.
My girls were right in there!
Another fun fundraiser, was Jail. My mom sent Reese
to jail for ten minutes. We like to start our juvenile delinquency
We couldn't leave Holland and Greer out of the fun.
We hired Malek (the guy on the left) to round them up and haul
them off to the pokey.
We were there for about five hours (not in jail, at the event)-- and the dance floor
just kept growing.
The student union/rec center regulations don't allow anyone
under 18 to stay past ten. So at about 9:30, all the hero
families went back on stage.
Kean had his little harem of coeds surrounding him.
He wanted nothing to do with his family-- he was
too busy dancing in the arms of one girl after another!
And he didn't even seem phased by the fact there was nearly
a thousand kids dancing and watching him.
Our favorite part - hands down- is the end of OUR night--
when all the students form a monster of a long tunnel
and we all run the gauntlet-- telling them thank you and
giving them high fives.
It is an incredible experience...
where we feel nothing but love.
Kean ate it up-- especially since he was being carried
the entire time (her back must be aching today)
by a cute, blonde co-ed.
We went home to bed (Kean was asleep before we left the parking garage)
while the students danced all night.
They unveiled the funds raised this morning.
Drum roll please....
$150,712.62 RAISED FOR THE KIDS!
Can you believe that?
The future of our country is in good hands.
Monday, February 13, 2017
Excuse me while I scream.
We were back in the doctor's office tonight.
Kean has, yep, two more ear infections.
His third set in a months time.
Who knows if they are the same ear infections that never cleared up.
All I know is he's miserable.
Those are his toes sticking above his shoulder while we waited.
He's on antibiotic number three (a stronger one for a longer time).
and we've been ordered to see his ENT. Today's doc suspects
an underlying sinus infection is to blame.
Well at least we had a few days break.
We went up to Sun Valley for the weekend-- mostly
so I could testify at a hearing on behalf of Camp Rainbow Gold.
They are trying to build their own camp on a pristine
piece of property up a canyon.
Unfortunately, the uber rich neighbors don't want it in their backyard.
It was a long, long and depressing experience.
It's a good thing we made up for it in fun the rest of the weekend with the family.
The snow was unbelievable-- cars and homes buried.
We saw signs of avalanches everywhere-- even Baldy,
the big ski resort was closed down for a few days while they
set off charges to trigger avalanches.
We spent one day with our favorite Camp Rainbow Gold counselor,
Jaime and her family. The girls couldn't get enough of her
little baby, Maeve.
She took us up this amazing sledding hill...
where, I'm not sure if we talked more or sledded more.
That night we all relaxed at the hotel.
On Saturday, we took a leap and got Byron back in skates and on ice.
The last time he tried skating, he skewered his leg, got a metal plate,
10 pins and was on crutches for months and months.
He said it was playing with his mind-- but after a few minutes
he settled in and boy, did we have fun.
Kean sat in that little chair for a whopping 1 and a half hours
while we took turns pushing him around.
He was in heaven.
Hopefully, he's hanging on to all those fun memories while
he feels so lousy.
Monday, January 30, 2017
Happy Anniversary to this guy--
18 years- wow.
What we've been through is enough to fill
several books. But hopefully, we are better people for it.
Greer and Reese went all out and decorated our room
to mark the occasion.
Here's the sad part though,
Kean and I are both sick--
we stayed home today.
He with two infected ears and two infected eyes.
Me, a raging case of Bronchitis.
He's back on antibiotics (again).
I'm on codeine cough syrup and steroids to try and clear
up my cough.
Greer says I says I sound like a dying squirrel.
You can see our batch of drugs behind the pizza boxes.
Byron brought home Pizza Hut after I ordered Dominoes!
(This is even the shortened stack. We pawned off a pizza on the Bodily's)!
Kean and I did venture out of the house for his big cancer screens at MSTI.
I'd already cancelled a few times because of the flu so felt we should
try and make this one since by afternoon we were both feeling somewhat better.
Typical Kean-- he ripped off every mask-- so they kept us
quarantined into a room to do vitals, blood draws and the full exam.
All went well-- his counts are good-- even though they had
to take blood twice (they messed up his first submissions).
And the even better news-- we don't have to go back for another three months!
Wednesday, January 25, 2017
Gigi got braces today
and I think she looks adorable.
Okay, so maybe she looked kind of like a platypus during
the procedure but she looks cute now.
And here's my update on Kean's medical issues.
We drove through a snow storm (again) on Monday
to make it to the hospital for his meeting with
the Pediatric Neurologist.
In short, all is well.
Dr. Foy didn't find anything scary from his EEG and found
no reason why he had those two seizures.
So we are not going to do anything, we especially are
not going to worry and we hope we can be done with this nonsense!
Sunday, January 15, 2017
I'm hoping Kean won't remember how traumatic
it was for him to go through all this hospital testing.
I tell ya, I never want to go through it again. Holding him
down was traumatic for me!
As a refresher, Kean had a couple of seizures a month or so ago.
Lucky us, we got to spend the night in the hospital
to test his brain activity and his sleep patterns.
That miserable, miserable test showed he has moderate
sleep apnea and surprise-- his heart was stopping several times in the night
for two seconds or more.
That new, little trick earned us another trip to the hospital
to take home a heart harness monitor.
More fun times, especially in the middle of the night
as Kean woke me up time and time again to say "off"!
We finally got in to see our new Pediatric Cardiologist
(super cool Dr. Womack). We still have to wait
to see the Pediatric Neurologist and the Pulmonary Specialist.
We got the best possible news!
And I think Kean even sensed what the doc was going to find.
He ran more tests and talked our ears off...
But here are the cliff notes.
He said, and I quote: "Bottom line, your son has a good ticker".
In other words, this mama doesn't need to worry!
Now to get through the next two appointments.
And certainly hoping for the same good results.